|ALS MNH Association: Don’t Just Live, Support Others to Live!|
Grantee: ALS MNH Association
Applicant: Alper Kaya
Purpose: Giving theoretical and practical information to ALS patients and their families about intensive care at home
Location: Istanbul, Izmir
Grant Amount: 40,000 TL
Partner: Home Care Association, Dokuz Eylul University Neurology Clinic, Arel University, Izmir University School of Health Nursing DepartmentPeriod: 21 April 2014 – 15 April 2015
Amyotrophic Lateral Sclerosis (ALS) is a disease resulting from the degeneration of motor neurons in brain stem and spinal cord. The loss of motor neurons causes weakness and muscle atrophy. Cognitive functions of the patients are not damaged. ALS patients, whose lives radically change after discharged from the intensive care unit, start to live in the care of their relatives who are not informed about the intensive care conditions at home. This is a traumatic and despairing period both for the patients and the families.