Koza (Cocoon) Project: Development of Parent to Parent Support Program

Project Summary
Grantee : Eskişehir Development Foundation
Purpose : Preparing a training program with the purposes of informing children with special needs in the early period and their families about their rights and providing them social-emotional support
Location : Eskişehir
Grant Amount : 157.378 TL
Project Partner : Early Childhood Intervention Association, Down Syndrome Association, Anadolu University Research Institute for Individuals with Disabilities, Autism Awareness Association, Eskişehir Metropolitan Municipality Social Services Department, Odunpazarı City Council, Acaport
Period : 20 July 2020 - 12 July 2021
Status : Completed
Project Year : 2020


Parents of children with special needs must first be informed about their rights and have access to resources where they can receive social-emotional support, to benefit from early period services. In order to achieve this, it is thought that providing support from parent to parent may be a solution. However, it is seen that there is no proven and developed program in our country to provide information and social support from parent to parent regarding early intervention.

Project Goals

  • Training content will be developed after the focus group interviews with 16 people consisting of parents who have kids or siblings with special needs.
  • Trainings will be held with butterfly parent candidates for 8 weeks.
  • 5 butterfly parent candidates will form a caterpillar parent group with at least 3 participants each.
  • Butterfly parents will present their training content to caterpillar parents for 8 weeks.
  • Butterfly and caterpillar parent application book will be prepared and expanded on the website.

Project Results

  • After meetings with experts and experienced parents of a child with special needs (butterfly parents), a training program was developed under the topics of social emotional learning, information to information, and advocacy support.
  • 15 volunteer butterfly parents attended parent support and mentoring meetings.
  • Caterpillar and butterfly parents were matched so that each caterpillar parent could receive one-on-one support and butterfly parents could support each other in the process.
  • A parent training book developed in which there are contents and materials that will provide parents with convenience and guidance in their interviews.
  • A website prepared for information sharing and butterfly-caterpillar parent applications.


“There is no such thing as being a butterfly on this journey, we are always caterpillars – some of us are just bigger than the others. The reason I joined this project was to support other mothers, but I did get a lot of support here and learned a lot.” A mother and project participant

“At first, you don’t think of looking for another family with a child diagnosed with Down syndrome to learn about their experience, but then you start wondering about other families like yours, about what they did to get past this stage”. A father and project participant


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